Porównanie opinii rodziców na temat jakości życia dzieci leczonych z powodu naczyniaków

Janina Książek¹, Anna Raczkowska², *Renata Piotrkowska¹, Piotr Jarzynkowski¹

Summary
Introduction. Although studies of the quality of life of children operated on for hemangiomas do not have a long tradition in medical sciences, such studies are needed for the quality of life to improve.
Aim. This paper is intended as an attempt at comparing parents’ views on the quality of life of their children operated on for hemangiomas with the views of parents of children treated by means of other methods.
Material and methods. The study material included 50 children treated for hemangiomas at the Pediatric Surgery Ward of the Copernicus Hospital and the Hospital Outpatient Clinic in Gdańsk. The study method was a diagnostic survey with a questionnaire of our own design. Statistical package Statistica^®10 was used for data analysis, and factorial ANOVA test and t-Student test – for dependence verification.
Results. Nearly half the parents encountered negative reactions of the public to seeing a hemangioma in children. The child’s sex and age had no statistically significant effect on the choice of method of hemangioma removal. There are statistically significant differences between parents’ opinions on the rightness of the decision to operate and parents’ opinions on the decision to start treatment using other methods.
Conclusions. Interdisciplinary teams ought to be prepared to evaluate the quality of life in children undergoing hemangioma treatment. Families of children with hemangioma need the acceptance of others, therefore social education is necessary. Research into the quality of life of children with hemangiomas is a necessary component of holistic child care by staff, family and society, and of an economic and social evaluation leading to changes. Research results may be applied in the development of interdisciplinary competences in the care of children and their families on pediatric and pediatric surgery wards and in the home environment.

To jest tylko fragment artykułu. Aby przeczytać całość, przejdź do Czytelni medycznej.